My Story Living with Lupus is an online community and resource hub supporting those affected by lupus and other chronic illnesses. We provide educational materials, advocacy support, wellness resources, and a supportive community to help you navigate living with a chronic illness.

Susan L. Hendrix, MHA, Ph.D., founded My Story Living with Lupus. Diagnosed with lupus herself, she created this platform to support underserved communities through the Charlie E. & Minnie P. Hendrix Foundation for Chronic Illness. Her mission is to empower those with lupus by sharing her experiences, knowledge, and resources.

Our resources include educational articles, self-advocacy tools, online courses, and support groups. We cover a variety of topics, including symptom management, healthcare advocacy, mental health, nutrition, and financial assistance options.

You can support us by sharing our resources on social media, volunteering, or donating to help fund our programs for lupus patients. Every effort helps us continue our mission to support the lupus community and underserved individuals.

Yes, we offer a variety of resources tailored for caregivers and family members. These resources help them understand lupus, develop effective communication strategies, and find ways to support their loved ones while also taking care of their own well-being.

We advocate for health equity, access to quality care for underserved communities, and raising lupus awareness. We also provide tools to help you advocate for yourself within the healthcare system and stay informed about relevant policies and legislation.

We're here to help! If you have any other questions or need specific information, please contact us through our Contact page. Our team will get back to you as soon as possible.