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Welcome

Welcome to our page. We hope that the information provided will assist you in your journey of learning more about lupus. The information is not intended to replace the advice of your physician, but to empower your knowledge for a better understanding of lupus and its effects.

About

My Journey with Lupus

Welcome to My Story Living With Lupus. My name is Susan Hendrix, MHA and I am passionate about promoting inclusion and raising awareness about chronic illness. We believe in creating a supportive community where everyone can learn more about lupus and other chronic illnesses. Whether you want to take a class, read our blog, or share your own experiences, we are here for you. Join us on this journey and let's make a difference together.

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Information Provided

All of the contributions to our site are provided by individuals who are/have been in the medical field for 30+ years. These individuals hold Masters along with Doctorial Degrees.

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Researched Information

The researched information provided within our site are provided from governmental sources and scholarly sources.

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First-Rate Materials

We have strict standards when it comes to what we produce and never compromise on quality. This is especially true when it comes to the first-rate information. Our site visitors deserve the highest level of information, and we work tirelessly to maintain those standards.

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Health and Economic Benefits of Chronic Disease Interventions

Susan L. Hendrix

Apr 13, 20233 min read

Health and Economic Benefits of Chronic Disease Interventions

Chronic diseases are the leading causes of illness, disability, and death in the United States. They are also the leading drivers of our...

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Mental Health is Health

Susan L. Hendrix

Apr 13, 20233 min read

Mental Health is Health

Mental health in the United States has been pushed back for decades. The Center for Disease Control and Prevention (2019) asserts that,...

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Tjalma Syndrome A Rare Manifestation of Systemic Lupus Erythematosus

Susan L. Hendrix

Apr 13, 20232 min read

Tjalma Syndrome A Rare Manifestation of Systemic Lupus Erythematosus

Tjalma syndrome, also known as pseudo-pseudo Meigs' syndrome, is a rare manifestation of conditions in patients with systemic lupus...

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Another Health Episode

Susan L. Hendrix

Apr 13, 20233 min read

Another Health Episode

We all know that having an autoimmune illness such as SLE (Lupus) is unpredictable. Most of us who have this illness never know from one...

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Cognitive Decline

Susan L. Hendrix

Apr 13, 20231 min read

Cognitive Decline

Self-reported cognitive decline varies among racial and ethnic groups, with the lowest among Asian and Pacific Islander adults and the...

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Social Factors Impact Those with Lupus

Susan L. Hendrix

Apr 13, 20232 min read

Social Factors Impact Those with Lupus

Social determinants of health (SDH) are defined as the conditions in which people are born, grow, work, live, and age. In a new study,...

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The More You Know About Autoimmune Polyendocrine Syndrome

Susan L. Hendrix

Apr 13, 20231 min read

The More You Know About Autoimmune Polyendocrine Syndrome

Autoimmune polyendocrine syndrome (APS) is a group of rare diseases characterized by autoimmune activity against more than one endocrine...

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Equity vs Inequity in Healthcare for African Americans

Susan L. Hendrix

Dec 28, 20222 min read

Equity vs Inequity in Healthcare for African Americans

Over the past years we have heard about the inequities that exists amongst those who are underserved. Basically, I'm referring to those...

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October is Breast Cancer Awareness Month

Susan L. Hendrix

Oct 20, 20222 min read

October is Breast Cancer Awareness Month

October is Breast Cancer Awareness Month, an annual campaign to raise awareness about the impact of breast cancer. Black women are twice...

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Inequalities in Healthcare for Disabled Individuals

Susan L. Hendrix

Jul 30, 20223 min read

Inequalities in Healthcare for Disabled Individuals

#inequality #healthcare #disabled #chronicillness The poor mental and physical health of people with disabilities has been well...

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Is It Lupus or Not?

Susan L. Hendrix

Jul 13, 20223 min read

Is It Lupus or Not?

We know that lupus is so very unpredictable, and you never know when and where it will strike. I woke up one morning in excruciating...

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Lupus and Non Hodgkins Lymphoma

Susan L. Hendrix

Dec 2, 20212 min read

Lupus and Non Hodgkins Lymphoma

The Complexity Of Living With Lupus Susan L. Hendrix, MHA, Ph.d I can only speak for myself about living with a chronic illness called...

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Lupus and Fossa Rosenmuller

Susan L. Hendrix

Sep 1, 20212 min read

Lupus and Fossa Rosenmuller

Susan L. Hendrix, MHA, Ph.D. September 01, 2021 Have you heard the term Fossa Rosenmuller Mass? Well, I recently had a scan performed,...

384 views0 comments

Susan L. Hendrix

Aug 7, 20212 min read

No One Knows Your Journey

Susan Hendrix, MHA, Ph.D. 08/07/2021 Two roads diverged in a yellow wood, And sorry I could not travel both And be one traveler, long I...

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Know The Facts About Candida Auris.

Susan L. Hendrix

Jul 26, 20211 min read

Know The Facts About Candida Auris.

Candida auris is an emerging fungus that presents a serious global health threat. CDC is concerned about C. auris for three main reasons:...

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Delta Variant, What Is It? And How Transmissible Is It?

Susan L. Hendrix

Jun 25, 20212 min read

Delta Variant, What Is It? And How Transmissible Is It?

#deltavariant #pandemic #mystorylivingwithlupus Here in the State of Michigan, the state has began to gradually opening up. Restriction...

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Your Health Matters

Susan L. Hendrix

May 28, 20212 min read

Your Health Matters

Susan L. Hendrix, MHA, Ph.D. I know that you realize that your health matters. So put down that glazed doughnut, that pizza and soda,...

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Ethnicity And Disease

Susan L. Hendrix

May 24, 20212 min read

Ethnicity And Disease

Susan L. Hendrix, MHA, Ph.D. Should the color of your skin, determine the care you receive from doctors or hospitals? If you stated no to...

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World Lupus Day!

Susan L. Hendrix

May 10, 20212 min read

World Lupus Day!

Lupus is a serious life-debilitating fatal disease where the immune system attacks our tissues and organs. Every year, May 10th is...

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Susan L. Hendrix

May 3, 20212 min read

Warriors Mindset!

The month of May represents Lupus Awareness Month. A time where those of us who suffer from this chronic illness come together to bring...

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