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Welcome

Welcome to our page. We hope that the information provided will assist you in your journey of learning more about lupus. The information is not intended to replace the advice of your physician, but to empower your knowledge for a better understanding of lupus and its effects.

About

My Journey with Lupus

Welcome to My Story Living With Lupus. My name is Susan Hendrix, MHA and I am passionate about promoting inclusion and raising awareness about chronic illness. We believe in creating a supportive community where everyone can learn more about lupus and other chronic illnesses. Whether you want to take a class, read our blog, or share your own experiences, we are here for you. Join us on this journey and let's make a difference together.

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Information Provided

All of the contributions to our site are provided by individuals who are/have been in the medical field for 30+ years. These individuals hold Masters along with Doctorial Degrees.

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Researched Information

The researched information provided within our site are provided from governmental sources and scholarly sources.

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First-Rate Materials

We have strict standards when it comes to what we produce and never compromise on quality. This is especially true when it comes to the first-rate information. Our site visitors deserve the highest level of information, and we work tirelessly to maintain those standards.

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The Eye's Have It!

Susan L. Hendrix

Mar 30, 20212 min read

The Eye's Have It!

Have you ever woke up and you take a look in the mirror and it looks like someone has landed a punch to your eye? Well this is what...

10 views0 comments

Celebrating African Americans In The Medical Field.

Susan L. Hendrix

Feb 23, 20217 min read

Celebrating African Americans In The Medical Field.

They fought slavery, prejudice, and injustice — and changed the face of medicine in America. They invented modern blood-banking, served...

5 views0 comments

Anemia and Low Lymphocyte Numbers Are Most Common Blood Disorders in Lupus Patients, Study Finds.

Susan L. Hendrix

Dec 22, 20202 min read

Anemia and Low Lymphocyte Numbers Are Most Common Blood Disorders in Lupus Patients, Study Finds.

Low levels of red blood cells (anemia) and lymphocytes, a type of white blood cell, are the most frequent hematological disorders in...

7 views0 comments

Rogue cells at root of autoimmune disease.

Susan L. Hendrix

Dec 22, 20204 min read

Rogue cells at root of autoimmune disease.

Research pinpoints rogue cells at root of autoimmune disease by Garvan Institute of Medical Research Researchers discovered that in...

4 views0 comments

Lupus And Crohn's Disease Connection.

Susan L. Hendrix

Dec 22, 20203 min read

Lupus And Crohn's Disease Connection.

In November 2020, I went into a bad Lupus flare, this flare was not like the other flare's that I had been accustomed to going into. The...

56 views0 comments

Understanding Drug Induced Lupus

Susan L. Hendrix

Oct 7, 20203 min read

Understanding Drug Induced Lupus

We all know that lupus is an autoimmune disorder/disease which can effect the internal organs. We also know that lupus effects each and...

16 views0 comments

A Hard Pill To Swallow, Hydroxychloriqunie My Story.

Susan L. Hendrix

Aug 17, 20202 min read

A Hard Pill To Swallow, Hydroxychloriqunie My Story.

This is all about my journey taking hydroxychloriquine. By some they state it saved their life, for me it caused more damage than good.

7 views0 comments

Honoring Those Who Serve On The Front Line During COVID-19.

Susan L. Hendrix

Jun 17, 20201 min read

Honoring Those Who Serve On The Front Line During COVID-19.

Gina Bryant, is a mother of four, a grandmother of 16 with her 17th grandchild on his/her way. Gina appeared on the Susan Hendrix My...

6 views0 comments

Yes It's Lupus Awareness Month.

Susan L. Hendrix

May 16, 20204 min read

Yes It's Lupus Awareness Month.

Lupus Therapies Continue to Evolve It can be a difficult disease to diagnose and a difficult disease to treat. It’s called lupus, and as...

6 views0 comments

Motivation, Do You Still Have It?

Susan L. Hendrix

Apr 19, 20202 min read

Motivation, Do You Still Have It?

During this pandemic, have you lost your motivation, creativity, your perspective? Well let me tell you this, as for myself, this time...

8 views0 comments

Public Health and COVID-19, The Breakdown in America's System.

Susan L. Hendrix

Apr 10, 20204 min read

Public Health and COVID-19, The Breakdown in America's System.

Public Health is inherently political nature. Now the social justice underpinnings of public health serve to stimulate political conflict....

14 views0 comments

Manage Anxiety & Stress

Susan L. Hendrix

Mar 17, 20204 min read

Manage Anxiety & Stress

Stress and Coping The outbreak of coronavirus disease 2019 (COVID-19) may be stressful for people. Fear and anxiety about a disease can...

60 views0 comments

" It's All in Your Head"

Susan L. Hendrix

Feb 28, 20204 min read

" It's All in Your Head"

How many times have you been told “It’s All in Your Head”? Those of us who suffer from having Lupus will in most cases be told this.

13 views0 comments

Conversation with My Body!

Susan L. Hendrix

Feb 3, 20203 min read

Conversation with My Body!

Some of you may have seen my Facebook, Periscope or heard it recently on one of my podcast. I'm no longer on any medications right now...

11 views0 comments

Bone Marrow Transplant for Autoimmune Disease: Ready for Prime Time?Everything you know about BMT

Susan L. Hendrix

Apr 10, 20193 min read

Bone Marrow Transplant for Autoimmune Disease: Ready for Prime Time?Everything you know about BMT

savesaved by John Gever, Managing Editor, MedPage Today April 08, 2019 CHICAGO -- ...

21 views0 comments

Susan L. Hendrix

Apr 10, 20191 min read

What Are You Afraid Of?

Let's really have a open conversation about living with the unknown and yes unexpected affects of Lupus. What are you most afraid of?...

2 views0 comments

Through Partnership Brings Awareness

Susan L. Hendrix

Apr 10, 20191 min read

Through Partnership Brings Awareness

Premio Handmade Gemstone Bracelets has a new line of Awareness Bracelets. To purchase one of these hand made gemstone bracelets or to...

6 views0 comments

Susan L. Hendrix

Mar 18, 20196 min read

Do You Really Know Your Doctor?

I have had my share of doctors who's only concern was to get you in and get you out. We all have to understand that the medical field...

3 views0 comments

Susan L. Hendrix

Mar 16, 20191 min read

Top Lupus Podcast

My Story Living With Lupus Podcast, just received an award from the founder of Feedspot.com for being one of the top 5 lupus podcast, you...

4 views0 comments

Susan L. Hendrix

Dec 3, 20182 min read

What If?

WHAT IF? What If, you went to the doctor for a follow up appointment, and the doctor complained about being one hour behind and he or she...

8 views1 comment

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